List of people with motor neuron disease
This is a list of notable people who have or had motor neuron disease, a group of rare neurodegenerative disorders that selectively affect motor neurons, the cells which control voluntary muscles of the body. This includes amyotrophic lateral sclerosis (ALS), progressive bulbar palsy (PBP), pseudobulbar palsy, progressive muscular atrophy (PMA), primary lateral sclerosis (PLS), spinal muscular atrophy (SMA) and monomelic amyotrophy (MMA), as well as some rarer variants resembling ALS.
Living
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NFL football player Steve Gleason chronicled his experiences with ALS in the documentary Gleason. He was awarded the Congressional Gold Medal for his contributions to ALS awareness.
- Ady Barkan (born 1983), American lawyer and political activist.[1]
- Jason Becker (born 1969), American musician, songwriter and composer.[2]
- Charlie Bird (born 1949), Irish journalist.[3]
- David Bradley (born 1954), American artist.[4]
- O. J. Brigance (born 1969), American football player.[5]
- Esteban Bullrich (born 1969), Argentine politician.[6]
- Rob Burrow (born 1982), English rugby league player.[7]
- Neale Daniher (born 1961), Australian rules footballer.[8]
- Stephen Darby (born 1988), English footballer.[9]
- Yasuhiko Funago (born 1957), Japanese politician.[10]
- Steve Gleason (born 1977), American football player.[11]
- Kerry Goode (born 1965), American football player.[12]
- Tim Green (born 1963), American football player, commentator and author.[13]
- Frank Hansen (born 1952), American bobsledder.[14]
- Lenny Johnrose (born 1969), English footballer.[15]
- Mark Kirton (born 1958), Canadian ice hockey player.[16]
- George Kooymans (born 1948), Dutch musician (Golden Earring).[17]
- Steve McMichael (born 1957), American football player and professional wrestler.[18]
- Kenneth Mitchell (born 1974), Canadian actor.[19]
- Emanuel Morales (born 1987), Argentine footballer.[20]
- Augie Nieto (born 1958), American entrepreneur, founder of Life Fitness.[21]
- Jim Poole (born 1966), American baseball player.[22]
- Tim Shaw (born 1984), American football player.[23]
- Thomas Sleeper (born 1956), American conductor.[24]
- Eric Stevens (born 1989), American football player.[25]
- Tempt One, American graffiti artist.[26]
- David Tomassoni (born 1952), American politician.[27]
- Kyousei Tsukui (born 1961), Japanese voice actor.[28]
- Juan Carlos Unzué (born 1967), Spanish footballer and manager.[29]
- Doddie Weir (born 1970), Scottish rugby union player.[30]
- William White (born 1966), American football player.[31]
- Justin Yerbury (born 1974), Australian molecular biologist.[32]
- Moamen Zakaria (born 1988), Egyptian footballer.[33]
Deceased
Public awareness of the disease gained prominence upon the diagnosis of baseball player Lou Gehrig, whose name would become an alternative title for the disease.
Astrophysicist Stephen Hawking, whose ALS was diagnosed in 1963, had the disease for 55 years, the longest recorded time one had the disease. He died at the age of 76 in 2018.
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Chairman Mao Zedong was reported to have been suffering from ALS.
- Eddie Adams (1933–2004), American photographer.[34]
- José Afonso (1929–1987), Portuguese singer-songwriter, revolutionist against the Estado Novo regime.[35]
- Gordon Aikman (1985–2017), British political researcher and motor neurone disease campaigner.[36]
- Frank Alamo (1941–2012), French singer.[37]
- Bruce Allpress (1930–2019), New Zealand actor.[38]
- Pietro Anastasi (1948–2020), Italian footballer.[39]
- Billy Anderson (1941–1996), American football player.[40]
- Hideyuki Ashihara (1944–1995), Japanese karate master.[41]
- Edda Heiðrún Backman (1957–2016), Icelandic actress.[42]
- Dale Baer (1950–2021), American animator.[43]
- Derek Bailey (1930–2005), English guitarist.[44]
- Victor Bailey (1960–2016), American bassist (Weather Report).[45]
- Katharine Balfour (1921–1990), American actress.[46]
- Marc Basnight (1947–2020), American politician.[47]
- Richard Beeman (1942–2016), American historian.[48]
- Mauril Bélanger (1955–2016), Canadian politician.[49]
- Emory Bellard (1927–2011), American college football coach.[50]
- Randall C. Berg Jr. (1949–2019), American attorney.[51]
- Giovanni Bertini (1951–2019), Italian footballer.[52]
- Stefano Borgonovo (1964–2013), Italian footballer[53]
- Jeff Bourne (1948–2014), English footballer.[54]
- Laurent Bouvet (1968–2021), French political scientist.[55]
- Michael Bowden (1947–2020), Australian footballer.[56]
- Fred Branfman (1942–2014), American anti-war activist and author.[57]
- Scott Brazil (1955–2006), American television producer.[58]
- Barbara Brenner (1951–2013), American health activist.[59]
- Donna Britt (1958–2021), American news anchor.[60]
- Harry Browne (1933–2006), American politician.[61]
- Ben Byer (1971–2008), American playwright, subject of the film Indestructible, documenting his life post-diagnosis.[62]
- Jeff Capel II (1953–2017), American basketball coach.[63]
- Linda Carlson (1945–2021), American actress.[64]
- Alicinha Cavalcanti (1962–2021), Brazilian event promoter.[65]
- Paul Cellucci (1948–2013), American politician and diplomat.[66]
- Ezzard Charles (1921–1975), American professional boxer.[67]
- Neil Cherry (1936–2003), New Zealand environmental scientist.[68]
- Marián Čišovský (1979–2020), Slovak footballer.[69]
- Dwight Clark (1957–2018), American football player.[70]
- Preston Cloud (1912–1991), American earth scientist.[71]
- Sammy Conn (1961–2014), Scottish footballer and manager.[72]
- Ronnie Corbett (1930–2016), Scottish comedian and actor.[73]
- John Coster-Mullen (1946–2021), American nuclear archaeologist.[74]
- John Curran (1953–2013), American financial journalist.[75]
- George Curry (1944–2016), American football coach.[76]
- Cyril Cusack (1910–1993), Irish actor.[77]
- Garth Dawley (1933–2020), Canadian journalist.[78]
- Dennis Day (1916–1988), American singer and actor.[79]
- Patrick Dean (1976–2021), American cartoonist.[80]
- Dieter Dengler (1938–2001), German-American aviator POW.[81]
- Papa Bouba Diop (1978–2020), Senegalese footballer.[82]
- Rickey Dixon (1966–2020), American football player.[83]
- Masayuki Dobashi (1935–2013), Japanese baseball player and manager.[84]
- Jim Dooley (1930–2008), American football player and coach.[85]
- Ann Downer (1960–2015), American author.[86]
- Jo-Anna Downey (1967–2016), Canadian comedian.[87]
- Brad Drewett (1958–2013), Australian tennis player and sports administrator.[88]
- John Drury (1927–2007), American news anchor.[89]
- Richard Ellman (1918–1987), American literary critic.[90]
- Sam English (1908–1967), Northern Irish footballer.[91]
- Jenifer Estess (1963–2003), American theatre producer and activist, subject of HBO film Jennifer; founding member of Project ALS.[92]
- Richard J. Ferris (1936–2022), American businessman.[93]
- Rose Finn-Kelcey (1945–2014), British artist.[94]
- Anto Finnegan (1973–2021), Northern Irish Gaelic footballer.[95]
- Hal Finney (1956–2014), American computer scientist.[96]
- Jay S. Fishman (1952–2016), American business executive.[97]
- Simon Fitzmaurice (1973–2017), Irish film director.[98]
- Roberto Fontanarrosa (1944–2007), Argentine cartoonist, comics artist and writer.[99]
- Phil Freelon (1953–2019), American architect.[100]
- Lou Gehrig (1903–1941), American baseball player.[101]
- Vic Gilliam (1953–2020), American politician.[102]
- Richard Glatzer (1952–2015), American film director and screenwriter.[103]
- Nina Griscom (1954–2020), American model and television host.[104]
- Stanislav Gross (1969–2015), Czech politician, Prime Minister of the Czech Republic.[105]
- David Hagen (1973–2020), Scottish footballer.[106]
- Darryl Hammond (1967–2017), American football player.[107]
- Stephen Hawking (1942–2018), English theoretical physicist.[108]
- Mo Hayder (1962–2021), British author.[109]
- Tony Hendra (1941–2021), British comedian and actor.[110]
- Hermann of Reichenau (1013–1054), German Benedictine monk and scholar.[111]
- Stephen Hillenburg (1961–2018), American animator, creator of SpongeBob SquarePants.[112]
- Jeremy Hindley (1944–2013), British horse trainer.[113]
- Bob Holman (1936–2016), British academic.[114]
- Alexis Hunter (1948–2014), New Zealand painter and photographer.[115]
- Catfish Hunter (1946–1999), American baseball player.[116]
- Giancarlo Ibarguen (1963–2016), Guatemalan businessman and academic.[117]
- Tunch Ilkin (1957–2021), Turkish-American football player and broadcaster.[118]
- Mick Imlah (1956–2009), Scottish poet.[119]
- Tari Ito (1951–2021), Japanese performance artist.[120]
- Jacob Javits (1904–1986), American politician.[121]
- Axel Jensen (1932–2003), Norwegian author.[122]
- Derrick Jensen (1956–2017), American football player.[123]
- Tony Judt (1948–2010), British-American historian.[124]
- Gordon Kannegiesser (1945–2022), Canadian ice hockey player.[125]
- Novy Kapadia (1952–2021), Indian football journalist.[126]
- Jaan Kaplinski (1941–2021), Estonian author, translator, philosopher, and culture critic.[127]
- Yuzo Kawashima (1918–1963), Japanese film director.[128]
- Norman Kay (1929–2001), British composer.[129]
- George Keiser (1946–2021), American politician.[130]
- Hans Keller (1919–1985), Austrian-born British musician and writer.[131]
- Khaled Khan (1958–2013), Bangladeshi actor.[132]
- Shahidul Islam Khokon (1957–2016), Bangladeshi filmmaker.[133]
- Motoo Kimura (1924–1994), Japanese biologist.[134]
- Suna Kıraç (1941–2020), Turkish-American businesswoman.[135]
- Mark R. Kravitz (1950–2012), American judge.[136]
- Harry Kroto (1939–2016), English chemist.[137]
- Mike Kullman (1962–2003), American football player.[138]
- Jean-Yves Lafesse (1957–2021), French humorist and actor.[139]
- Hannu Lahtinen (1960–2020), Finnish wrestler.[140]
- John Land (1938–2021), British field hockey player.[141]
- Lead Belly (1888–1949), American singer.[142]
- Scott Lew (1968–2017), American film director and screenwriter.[143]
- Stefan Lindqvist (1967–2020), Swedish footballer.[144]
- Tinus Linee (1969–2014), South African rugby player.[145]
- Tony Liscio (1940–2017), American football player.[146]
- Eric Lowen (1951-2012), American musician (Lowen & Navarro)[147]
- Rebecca Luker (1961–2020), American actress and singer.[148]
- Antoine "T.C.D." Lundy (1963–1998), American musician (Force MDs).[149]
- Francisco Luzón (1948–2021), Spanish banker.[150]
- David MacLennan (1948–2014), Scottish actor.[151]
- Pave Maijanen (1950–2021), Finnish musician.[152]
- Sergei Mandreko (1971–2022), Russian-Tajik footballer.[153]
- Tu'u Maori (1988–2022), Papua New Guinean rugby player.[154]
- Mickey Marvin (1955–2017), American football player.[155]
- Scott Matzka (1978–2018), American ice hockey player.[156]
- Nicky McFadden (1962–2014), Irish politician.[157]
- Mike McGlinchey (1944–1997), American college football coach.[158]
- Fred McNeill (1952–2015), American football player.[159]
- Jim McMullan (1936–2019), American actor.[160]
- David McSkimming (1950–2016), Australian pianist.[161]
- Denny Miller (1934–2014), American actor.[162]
- Sherron Mills (1971–2016), American basketball player.[163]
- Charles Mingus (1922–1979), American jazz composer and bandleader.[164]
- Kyle Morrell (1963–2020), American football player.[165]
- Matthew Saad Muhammad (1954–2014), American boxer.[166]
- Colm Murray (1952–2013), Irish broadcaster.[167]
- Dawn Clark Netsch (1926–2013), American politician.[168]
- Arch Nicholson (1941–1990), Australian film director.[169]
- David Niven (1910–1983), British actor.[170]
- Krzysztof Nowak (1975-2005), Polish footballer.[171]
- Pablo Olivares (1965–2014), Spanish film writer and producer.[172]
- Aleksandar Petrović (1959–2014), Serbian basketball coach.[173]
- Ricardo Piglia (1941–2017), Argentine author.[174]
- Scott Pilarz (1959–2021), American academic administrator.[175]
- Christopher Pitchford (1947–2017), British judge.[176]
- Polly Platt (1939–2011), American production designer and film producer.[177]
- Mike Porcaro (1955–2015), American musician (Toto).[178][179]
- Sergei Eduardovich Prikhodko (1957–2021), Russian diplomat and government official, former deputy prime minister (2013–2018).[180]
- Anton Pronk (1941–2016), Dutch footballer.[181]
- Patrick Quinn (1983–2020), American co-founder of the Ice Bucket Challenge[182]
- James C. Renick (1948–2021), American academic administrator.[183]
- Don Revie (1927–1989), English footballer and manager.[184]
- Fernando Ricksen (1976–2019), Dutch footballer.[185]
- Tommy Robson (1944–2020), English footballer.[186]
- Sue Rodriguez (1950–1994), Canadian right to die activist.[187]
- Benet Rossell (1937–2016), Spanish artist.[188]
- Stanley Sadie (1930–2005), English musicologist.[189]
- Tetsurō Sagawa (1937–2021), Japanese actor.[190]
- Washington César Santos (1960–2014), Brazilian footballer.[191]
- Mike Schwartz (1950–2013), American pro-life activist.[192]
- Morrie Schwartz (1916–1995), American sociology professor, subject of Tuesdays with Morrie.[193]
- Kim Shattuck (1963–2019), American singer and songwriter (The Muffs).[194]
- Luton Shelton (1985–2021), Jamaican footballer.[195]
- Sam Shepard (1943–2017), American actor and playwright.[196]
- Michael Shute (1951–2020), Canadian academic.[197]
- Gianluca Signorini (1960–2002), Italian footballer.[198]
- Keith Skillen (1948–2013), English footballer.[199]
- Lane Smith (1936–2005), American actor.[200]
- Steve Smith (1964–2021), American football player.[201]
- Michael Soles (1966–2021), Canadian football player.[202]
- Jadranka Stojaković (1950–2016), Bosnian singer.[203]
- Jon Stone (1931–1997), American television writer.[204]
- Ezra Swerdlow (1953–2018), American film producer.[205]
- Jim Thistle (1955–2016), Canadian politician.[206] Additionally, he held office as both the Deputy Minister of Justice and Deputy Attorney General of Newfoundland and Labrador during his career.[206]
- Orlando Thomas (1972–2014), American football player.[207]
- Robin Thomas (1962–2020), Czech-American mathematician.[208][209]
- Stacy Title (1964–2021), American director, screenwriter and producer.[210]
- Dan Toler (1948–2013), American guitarist.[211]
- Francis Tsai (1967–2015), American comic book artist.[212]
- Kevin Turner (1969–2016), American football player.[213]
- Dmitri Vasilenko (1975–2019), Russian gymnast.[214]
- Roy Walford (1924–2004), American pathologist.[215]
- Robert Webber (1924–1989), American actor.[216]
- Paul C. Weiler (1939–2021), Canadian lawyer and professor.[217]
- Irv Weinstein (1930–2017), American news anchor.[218]
- Joost van der Westhuizen (1971–2017), South African rugby union player.[219]
- Mitch Wilson (1962–2019), Canadian ice hockey player.[220]
- Baron Wolman (1937–2020), American photographer.[221]
- Rocky Wood (1959–2014), New Zealand-Australian writer.[222]
- Robert C. Wright (1944–2014), American politician.[223]
- George Yardley (1928–2004), American basketball player.[224]
- Marius Žaliūkas (1983–2020), Lithuanian footballer [225]
- Mao Zedong (1893–1976), Chinese leader.[226]
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- Legendary Group Force MD’s Announce Death Of Group Member Trisco Pearson
- Muere Francisco Luzón, banquero y símbolo de la lucha contra la ELA (in Spanish)
- David MacLennan obituary
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- Rapid trauert um Sergei Mandreko (in German)
- Ex-Cronulla Sharks and Sydney Roosters star passes away aged 33 after battle with MND
- Potkey, Rhiannon (March 6, 2017). "Former Tennessee All-American Mickey Marvin dies at 61". Knoxville News Sentinel.
- "Michigan hockey mourns death of Scott Matzka following ALS battle". The Detroit News. December 16, 2018. Retrieved December 16, 2018.
- Fine Gael TD Nicky McFadden dies, aged 51
- Ex-coach McGlinchey dead at 52 He led Salisbury, Frostburg to Division III heights
- Ex-Vikings linebacker Fred McNeill dies at 63
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- David Grant McSkimming
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- Former Snow Hill Great Dies From ALS
- Jazz Bassist, Composer Charles Mingus, 56, Dies
- Remembering Kyle Morrell, former BYU safety and author of iconic defensive play
- Matthew Saad Muhammad always brought his 'A' game Archived 2014-05-30 at the Wayback Machine
- RTÉ broadcaster Colm Murray dies aged 61
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- Memories of Arch Nicholson
- David Niven, Hollywood's Ideal Englishman, Dies
- Nowak: Wolfsburgs "Nummer 10 der Herzen"
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- Basketball coach Aleksandar ‘Aco’ Petrovic dies
- Murió el escritor Ricardo Piglia (in Spanish)
- University of Scranton’s Pilarz dies from ALS complications
- Sir John Mitting to take over undercover police inquiry
- Polly Platt dies at 72; Oscar-nominated art director
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- The Don’s last home - remembering Don Revie’s Scottish links
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- Stanley Sadie
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- Nearly 20 years after his death, Morrie Schwartz lives on
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- Lane Smith, 69; Character Actor Gained Fame Playing Nixon in ‘The Final Days’
- Former Raider fullback Smith battles illness
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- Jon Stone; Co-Creator of ‘Sesame Street’
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- Dan Toler, Former Allman Brothers Guitarist, Dead at 65
- Artist Francis Tsai passes away
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- Diet guru who tried to live for ever bequeaths spartan regime
- Veteran Character Actor Robert Webber Dead at 64
- Paul Weiler, influential Canadian-born Harvard law professor, dies at 82
- Remembering Irv Weinstein: A Buffalo Broadcasting Legend
- Doctor confirms Joost's fears, 2014-08-22
- Ex-NHLer Mitch Wilson fights good fight as ALS sufferer
- Baron Wolman, Rolling Stone's First Staff Photographer, Dies At 83
- Rocky Wood (1959–2014)
- Longtime Delco lawmaker, judge Robert C. Wright dies
- Ex-Piston Yardley, 75, succumbs to ALS
- Marius Zaliukas: Former Hearts & Rangers defender dead at age of 36
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